Health-care consulting for families facing a cancer diagnosis

Cancer Champions offers compassionate guidance and clarity to you and your loved ones throughout your cancer journey.

As your trusted guide, we empower you and your family with knowledge and confidence to make informed decisions about your cancer care and regain your peace of mind.
Schedule a 15 minute get-acquainted call (free)Schedule a 90-minute consultation ($180)

With Cancer Champions,
You Don’t Have to Face Cancer Alone

If you or a loved one is feeling overwhelmed and anxious by a cancer diagnosis, compassionate support is available. Cancer Champions can ease your fear and uncertainty by helping you and your loved ones understand your specific disease, collect personalized healthcare information, evaluate your treatment options, and make informed decisions. 

Combining oncology knowledge with genuine compassion makes Cancer Champions a trusted advisor that complements your cancer care team and provides peace of mind throughout your cancer journey. Call Dana to learn more about how she can help to create a personalized roadmap to guide you and your family.

CONSULTATION

When you are presented with a difficult diagnosis, most likely you don’t know what you don’t know yet. Because I have professional healthcare experience and have personally been through several cancer journeys, I compassionately work with you to create a personalized roadmap to help you and your family navigate the journey. I also provide resources and informationto to help you take the first steps.

EDUCATION

When you are making critical decisions — you need access to the most relevant information, tailored to your unique situation. With both professional and personal experience researching treatment options and supportive care solutions for individuals facing cancer, I am uniquely qualified to offer families the types of information and resources they will need to make better informed decisions about their care.

FACILITATION

Upon hearing a cancer diagnosis, emotions often take control and inhibit decision making. Anxiety and fear may stifle important conversations that family members and loved ones need to have with the individual fighting cancer. I can help to facilitate these important but difficult conversations, with compassion and a kind and open heart.

From our inbox:

When my father was diagnosed with cancer I was in shock — and living 600 miles away. I knew he had been dealing with prostate cancer several years earlier, but I had no idea his cancer had returned and was so advanced.  

Dana was a true blessing. She went to see my father and assessed the situation quickly. Her knowledge of cancer was critical. She listened to the doctors and asked the right questions. She was far better equipped than us to discern what the doctors were saying — and counsel us appropriately. She monitored my father during his stay in the hospital and helped us navigate the transition to hospice. Dana was compassionate and a true professional all the way through to the end.

The nicest thing about working with Dana is her compassion. She has experienced the loss of her own parent to cancer and knows the confusion, uncertainty, and heartbreak involved. She is able to professionally communicate with the medical staff and gather the correct information — and translate it to us in an understandable way. Dana cried with us, prayed with us and was not afraid to be honest. I respected that.

— L.P., Atlanta, Ga

From our inbox:

“Money can’t pay you back for the wisdom you provided my family.”

From our inbox:

“You have been an angel that came into our lives…we could not be on this journey without you…”

From our Inbox:

“It’s difficult to express in words the importance of an advocate when faced with a life changing scenario like cancer. Dana was amazing, providing incredible counsel and guidance that was critical in the early days of our diagnosis. I could not imagine going through this again without the caring, loving expertise that Dana Hutson brought to our family. She is an angel.”

-Eric

From our Inbox:

“5 stars is just not enough for Dana Hutson. Dana has been a godsend to our family.  We lost my elderly father with Dementia after a cascade of events resulting from an ER visit.   My family has been struggling to bring closure to this situation.

I met Dana after a presentation she gave . During the presentation she gave an example that exactly described the experience we had at the hospital with my father. We hired Dana to go back and research the entire 30 day hospital experience and assist us in understanding what happened. Dana spent numerous hours reviewing hundreds of pages of notes from 4 different hospitals.

Our experience is far too common across the country. Unfortunately, we didn’t meet Dana until after my father’s death. If we had had Dana’s guidance, our family’s  outcome may have been radically different. I highly recommend seeking Dana’s assistance in advocating and supporting you during any type of medical situation. We will forever be grateful to Dana for bringing closure to our family.”

-Maureen

From our inbox:

” working with Dana has been an absolute blessing for my family. She was able to quickly assess my mom’s situation and immediately offer solutions that made a difference. Her knowledge and tireless legwork is a gamechanger for families trying to negotiate the healthcare system.”

-Sam

20 Questions to Ask Your Oncologist

It’s helpful to have a list of questions to ask your doctor when you are presented with a cancer diagnosis. Here are 20 questions to ask at your next doctor’s appointment.

Recent articles

Your cancer is “rare”. Now what?

You have been told you have cancer.   And to complicate matters your tumor is considered “rare”.

Cancer is not just one disease. There are more than 200 different types of cancer that include solid tumors as well as malignancies that occur in the blood or are blood-based, such as leukemias.

All cancer is complex, however, there are some cancers that occur more frequently making their treatment options more straightforward.   Breast, lung and prostate cancers represent the most commonly diagnosed tumors in the US.

The  large numbers of people affected by breast, lung and prostate cancer enables research to be conducted imparting information about best treatment options. The results of many clinical trials combined  with historical perspectives provide physicians with guidelines and agreed upon standards of care for treatment of the most common cancers.

So what makes a cancer rare?  Typically a cancer is considered rare if it starts in an unusual place in the body or is an unusual type or is simply not one of the most frequently diagnosed cancers.

My father was diagnosed with bile duct cancer, cholangiocarcinoma.

8,000 people in the US are diagnosed with this form of cancer annually. In comparison there are 97,220 new cases of colon cancer diagnosed is the US.

The small numbers of people affected with cholangiocarcinoma makes it rare and difficult  to conduct clinical trials to ascertain the best treatment. Physicians do not always agree on the best course of action for a “rare” cancer.

So what do you do?

Research and gather information.

What are the treatment options for your type of cancer? Are there clinical trials available? Are there experts for your type of cancer and where are they located?   The Internet is a useful tool, however, it is not regulated, be critical of the sources you use.

Choose your healthcare team.

Find an oncologist and cancer center that specializes in rare tumors. If possible it is best to stay within your insurance network; however, it may be worth going out of network to get the expertise of a specialist.

Find support.

Assemble a network of family, friends and community resources to help you manage emotional, practical and financial issues.

Information and knowledge are the most powerful tools to have as you plan and prepare. If you would like to explore how a private advocate can help please contact us at 703-403-7600 or email mailto:dana@cancer-champions.com.

Dana Hutson is a Board Certified Private Medical Advocate, helping people take control of the chaos of a cancer diagnosis.

Mesothelioma.. not just a disease of the elderly

What do you think of when you hear the word Mesothelioma?  For many, the word brings to mind televised warnings from legal firms urging you to contact an attorney if you or a loved one has been diagnosed with this rare form of cancer or been exposed to asbestos.

Often referred to as an  “old man’s “ disease, mesothelioma predominantly affects males following occupational exposure to asbestos.   The ubiquitous use of asbestos as a construction material prior to its regulation and ban in the late 1980’s means it may be found in buildings in almost every city and town throughout the world.  It has been used in paints, wall and ceiling textures, insulation,floor and roof tiles, plaster, siding and many other building materials found in homes, schools and public buildings.

As a result of the collapse of the World Trade Center Towers, more than 1,000 tons of asbestos is thought to have been released into the air and inhalation of a mixture of asbestos and other toxicants are thought to be linked to the unusually high incidence of cancer and cancer related deaths of emergency and first responders to the 911 disaster.

Mesothelioma in Children

Although rare, medical research has noted the development of mesothelioma in children since at least the 1960s, when asbestos was first scientifically linked to the disease.  The affected children had not reported an exposure to asbestos, however, given the rampant use of asbestos in construction and everyday products cited above, it is likely those children were unknowingly exposed

Mesothelioma is always aggressive, but there is significant evidence that it may develop more quickly in children and young teenagers than in older adults.

Signs and Symptoms

Because of the rarity of this diagnosis in children, symptoms of mesothelioma may be easily confused with more common conditions resulting in a likely scenario of one or more incorrect diagnoses before considering mesothelioma.

Symptoms in children are similar to those experienced in adults and may include:

  •       Shortness of breath
  •       Chest pain
  •       Fatigue
  •       Abdominal pain
  •       Loss of appetite
  •       Fever
  •       Unexplained weight loss

It is not uncommon for rare forms of cancer to be misdiagnosed while valuable time is wasted searching for the correct diagnosis.  If you are having doubts regarding a diagnosis and would like assistance in securing an expert opinion consider seeking the guidance of a private medical advocate.  How a Private Advocate can help

Fortunately mesothelioma in children is rare; however, it is a tragic illness without a clear answer as to how and why children are affected.  The limited number of cases makes research difficult, however, it is only through research that we will uncover the risks and better treatments for adults and children.   To Learn More about Mesothelioma

Caregiving and Cancer

 

 

In 2011, the Gallup-Healthways Well-Being Index reported that more than 1 in 6 Americans working full-time or part-time was assisting with the care of an elderly or disabled family member, relative, or friend.

Today, 7 years later, complex cancer care is shifting away from the inpatient hospital setting and moving into the home.   Now more than ever the availability and support of family caregivers is a significant factor in the world of Oncology and putting additional strain on the American workforce.

I recently read the results of a study published in Clinical Journal of Oncology Nursing, that was designed to better understand the needs and quality of life concerns of those providing care to a loved one with cancer.

Some common themes that arose from the interviews conducted as part of the study fell into 7 aspects of care.

Physical: Over all family caregivers expressed a desire to understand the patients’ needs as well as be present, attentive and reassuring.   The most repeated theme was the presence of and difficulty of dealing with treatment related side effects.

Psychological:   Uncertainty was a common theme that often gave way to anxiety, stress and feeling overwhelmed. Many caregivers expressed a desire to be present and offer support even as they faced a lack of emotional energy.

Social: A recurring topic among family caregivers was social isolation, felt both by the one being cared for and the caregiver. Caregivers reported needing support and not just information.   A quote from one caregiver,

“ The details about the clinical trials available online needed to be supplemented with a person who could answer questions. “ This caregiver found the information   to be confusing, overwhelming and largely indecipherable: “ It’s just a lot of literature that I have no idea about.. I did not go to med school; I don’t know what I’m reading. I need help”

Spiritual: Having a faith community reported to provide a source of support for some caregivers.

Financial: There were many costs associated to care, but the most commonly reported were the expenses of last minute flights, gasoline, overnight hotel stays, restaurant meals, and time lost at work. Even those who reported having healthcare coverage and financial stability voiced anxiety about the financial impact.

Caregiver Self-Care: The majority of the respondents were neglecting self-care in order to care for their loved ones. Many reported a lack of sleep and exhaustion.

The results of this study provide evidence for greater emphasis to be placed on the effects caring for a loved one with cancer have on family caregivers.

The family caregivers participating in this study voiced their need for support and resources.   A Board Certified Private Advocate could supply some of the much-needed support by:

  • Helping the family caregiver understand the disease and better anticipate the side effects associated with their loved one’s treatment eliminating much of the anxiety associated with uncertainty
  • Connecting the family with community support services to alleviate the isolation and allow the family caregiver an opportunity for self-care
  • Providing clarification and understanding of the medical literature, specifically clinical trials and treatment options to increase confidence in decision-making
  • Connecting the caregiver with resources to assist with managing the financial burdens associated with a catastrophic illness

If you or someone you know is providing care for a loved one with cancer, please call for a complimentary consult to see how I can help.

703-403-7600 or email dana@cancer-champions.com

 

 

Schedule a get-acquainted call 

The first step is a free 15-minute get-acquainted call to see how I can help. The next step is to schedule our first 90 minute consultation  , where I will personalize a roadmap for you and your family, and determine next steps.